Sept 3 My CMT Journey continues...

The NYC doctors recommended I go to a specialist out on Long Island. So mom made an appointment at St Charles Hospital in Pt Jefferson about a 45 minute ride from our home in Lindenhurst. The usual poking and prodding. “Lift you foot, hold it don't let me push down.”From the physician examining me. In the most common kinds of Charcot-Marie-Tooth disease or CMT, symptoms may include; foot deformity and foot drop (inability to hold foot horizontal). (CMTA What is CMT). When the doctor consulted my mom, he mentioned about it being hereditary. CMT, is a group of inherited disorders that affect the peripheral nerves, which are the nerves outside the brain and spinal cord. The most common forms of CMT are passed down from one generation to the next, meaning that it is dominantly inherited. My dad was the one who I inherited CMT from. I was around 11 when I first visited St Charles Hospital. To be continued.....If you feel led to give any donations for researching a cure, you can give online at http://www.cmtausa.org or to the MDA http://www2.mda.org/goto/CMTChallenge I have also started a blog at http://www.couragetobelievenow.blogspot.com

My Dad

Me at age 11