Saturday, September 27, 2014

Sept 27, My CMT Journey continues....
Last weekend was our ,1st Annual Shark Tournament, CMT Fundraiser. I arrived at 7:45 to a muddy, drizzly day. I pulled my walker out of the car and pushed in the mud to get to the table where we were registering our fishermen and women. Sat with my coffee and said a prayer before the day started. A few people arrived and sat waiting for our boats to come. My son, Joel, tried calling me but I was busy registering our fishing team. A few minutes later, a distraught Joel comes barreling in to announce our Captain Dave's boat would not start this morning and Captain Steve sent a text message saying he was out of town and would not be coming. Those were the two boats we had arranged to fit out team of 7 people. Captain Dave tried contacting other fishing captains he knew to help but to no avail. I called a family member who does charters and she announced that no one was going to go out in this weather she recommend we cancel and reschedule. Well we have sandwiches and salads already made, we have people coming from two hours away, and we have people already standing by waiting. One thing about those of us who have CMT is quitting is never an option. If anyone one knows what it's like to persevere it's people with disabilities. So once again I prayed and prayed hard. A team of fishermen and women came to register and had their own boat. “Do you have room for more?” I asked. They didn't. So off they went. We still have 4 people who showed up and are waiting. Two people from the other coast called and said they would come for lunch but canceled fishing. Finally a friend of my sons came with his team and was able to fit the four men waiting on their boat. Thank You, Lord. Now that we had the fishing team out it was time to set up for the lunch and raffles. A half hour after our fishing team departed the heavens opened and it poured for over an hour. Thankfully no lightening. Another family heard about our tournament on the CMT facebook page and drove two hours to support this fundraiser. Our out of town guests had a son, Anthony, age 13, first in their family who was diagnosed with CMT. We had the opportunity to share information and support. My sister, Patty, a CMTer, and other family members helped set up our lunch and raffles. Joel took a few land lovers along with our new friend Anthony and fished off the bridge. I went around with my scooter to introduce myself and help sell raffles. We had over 40 people show up for lunch. Our fishing teams arrived and we took pictures, gave out prizes and raffled off some great gifts. No sharks were caught but it was a great time for CMT friends and family to come together in fellowship and fun. We are still accepting donations so if you haven't given and would like to you can give to http://www.cmtausa.org/url/sharkchallenge. or to the MDA http://www2.mda.org/goto/CMTChallenge
A very special thank you to all our friends and family for coming out to this event and supporting us. With your help they will find a cure and stop the progression of CMT.

A round of applause goes out to the following businesses for their generous gifts.... Olde Fish House Marina, Joel @239 Mobile Detailing, Capt DJ at Florida Sons Fishing Charters, Capt Cathy Eagle @ Capt Jack's Boat Tours , Publix, Danny Yates Landscaping, Marine Trading Posts, Barnichol Hardware, Regenica by Stephanie, Vapin Apes, Rob's Bait and Tackle, Cape Tool and Tackle,Anderson Tackle, Applebee's, Outback, Island Grill, Olive Garden, Perkins, Bonefish Grill, The Morrings, Saltwater Smoke House, Bubba's, Jets Pizza, Target, Golden Corral and Winn Dixie, 
 
Team #2
Team #1



Our CMT Friends and Family

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