Have you ever been one of the kids who
stood on the side lines during recess while everyone buddied up on
the play ground? I have. There I stood wishing I didn't have CMT, (Charcot Marie Tooth ), and
I was normal. How I prayed a friend would come along side me and
ask if I wanted to play. I cried to my teacher and she said , “I
bet if you ask someone they will let you play”. So I took the risk
and feared rejection. I asked some if they wanted to play and they
either ignored me or said no. With my head bowed down and dejected, I walked away feeling like the biggest looser ever. Than I
saw a playmate sitting by herself eating lunch. I approached her and
asked if I could sit with her. She lifted her head up with the
biggest smile and quickly we become the best of friends during the
rest of the school year.
Fast forward into adulthood. Life has
changed and I find myself at a lost for purpose. Loneliness overtakes
me like a blood sucking leach. Looking for friends is as frustrating
as shopping for shoes. Oh don't even get me started in trying to find
the right shoe that I can wear with my AFO's, walk comfortably in and
are some what stylish. I used to go to a variety of stores and look
to no avail. Finally settling on a plain black sneaker that many of
the waiters wore at the event I attended.
My CMT has progressed to the point
where I need help getting in and out of the car. I can't walk long
distances and use a walker around my house. In order for me to go places I need someone to help me. Those that are closest to me have a difficult time watching me struggle so they are unable to give me the support I need.. Life has become way to busy with work
and family that although others mean well it's just not in their agenda to visit as often as they would like.
So like shopping for shoes I've tried
shopping for friends. I attend a few bible study groups and enjoy the groups and love the people. I do have one
friend who blesses me with lunch and shopping once a month. But the
other days in the month can get lonely. This is what I have found to
be helpful in my quest to overcome loneliness.
Just like the friend who was sitting by
herself at lunchtime when I was younger I need to look for people who
need a friend like me. Someone who's social calendar isn't penciled
in with events.
I look for ways to help. I hate that
others see me as needy. The other day I visited with my niece who
works two jobs. Her kids were off from school and I had my grand
daughter with me. I sat outside with the children and watched them
while my niece was able to get some much needed work done around the
house. I loved watching the kids have fun and I even received lots of hugs.
Select what you want to see on
Facebook. This one is my biggest challenge. It hurts to see pictures of others getting together for fun. I delete or hide the pictures and posts. I used to
make comments on how I would have loved to be included and it never went well.
Its better to just hit delete.
I change what I can. About a year ago I started a CMT FB
page called, CMT Fellowship, with another CMTer, Mark. This keeps me
busy praying for those in need and responding to some of the posts
they share.
And like shopping for shoes, I'm not
giving up until I find what I'm looking for. I want a friend who isn't crushed with family, work and a busy agenda. Someone who I
can be comfortable with, accepts me for who I am and one
who can have fun being around me. I continue to seek out different
support networks through church and other areas. I don't wait for others to give me an invite but I request their e-mail and phone number and try and stay in touch between groups. Starting out small and see who responds will help build a bridge. I am also looking to
start a CMT support group in my area.
If your struggling today with
loneliness I pray some of the ideas that are working for me would
work for you as well. I think of the the verse in Proverbs
18:24 “A man that has friends must show himself friendly, and there
is a friend that sticks closer than a brother”. Oh one last
thought, as much as I want to complain I must bring joy to the table
not negativity. Happy Shopping.
you must have a window in to my soul. I have felt so much rejection from friends in the last 6 years since my health has declined. It made it easier to leave Colorado I guess but the friends from church that one hurts the most. You and i would not leave people out we would find a venue or a way to include them but that is our journey and maybe it is inaccurate to expect others to have that kind of compassion? I have often wondered why the find friends tab on facebook doesn't work! jk I am just glad that I found you and you have blessed my life so much. We fall asleep to that cd 2-3 times a week. I am grateful for this new friendship.
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ReplyDeleteThank you for such kind words. I know I am learning that I can't depend on others for a fulfilled life. I pray continuously for a friend that sticks closer than a sister. I'm not done searching. God will provide. Praying your blog will bring healing to others. Stay blessed.
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