My Journey With CMT

Sept 1

September is CMT Awareness month and for each day I will post a little about my journey with CMT and some facts about this disorder. This is the beginning of my journey with CMT. I share this to get the knowledge out there, and ask as you follow me along on this journey you will pray for a cure. CMT affects 1 in  2,500 individuals cumulatively making it one of the most widespread inherited diseases. No treatments are available.

At the age of five, life was normal. We lived in Lindenhurst NY, and my father and mother worked hard in fixing up our new home. I was the youngest of three girls and did what other young girls did, I roller skated, climbed trees, jumped rope and did other childhood activities. However at the age of nine I started tripping and falling. I had a hard time playing jump rope, or tag. Running was becoming obsolete and I just kept tripping over my own feet. A mother knows when something is wrong and my mom knew I wasn't just clumsy. I had such poor balance and was walking over on the sides of my feet. CMT stands for Charcot-Marie-Tooth and is named after three physicians who were the first to describe it in 1886: Jean-Martin Charcot, Pierre Marie, and Howard Henry Tooth.(CMTA What is CMT). to be continued....We are so close to a cure but as with everything it takes funds. I am not challenging anyone to a bucket challenge.But please if you feel led to give any donations for researching a cure, you can give online at cmtaus.org or the MDA http://www2.mda.org/goto/CMTChallenge

age 5

age 9